Strategies for end-stage kidney disease (ESKD) behavioral change program and patient-reported outcome (PRO) measurement
To identify key barriers and facilitators related to successful self-management and clinical outcomes for patients with ESKD. We were also tasked with identifying and evaluating questionnaires available for the assessment of PROs in ESKD.
What we did:
- Worked within the consortium of multi-disciplinary vendors that the pharma sponsor had assembled.
- Reviewed literature on self-management among adult patients with ESKD throughout the patient journey and identified key behavioral targets and techniques to support positive change.
- Identified and evaluated PRO questionnaires for measuring concepts relevant to patients with ESKD and their caregivers.
A blueprint was developed to guide a patient support program for patients with ESKD. In addition, a recommended strategy was created for measuring key PROs for ESKD patients within the program, including measurement of health-related quality of life, treatment adherence and shared decision making. The project made it to finalist level for an ‘Excellence in pre-commercialisation communications’ industry award.